Some Common Questions
About Fuchs' Corneal Dystrophy
What did I do wrong to get this?
The answer is "nothing"! Unfortunately, this is a genetic disease and you were born with the gene! It may not have shown up for many years, but you've always carried it. You may not even have any idea who you got it from, since that person may never have had the disease advance enough to ever have had it diagnosed!
Is there a cure?
No; and Yes. No, there's nothing you can do to make it go completely away until it's bad. THEN there IS a "cure" for it .... a corneal transplant! That's where they remove the cornea from your eye and replace it with one from a deceased donor. There ARE ways that work for some people to help control some of the symptoms (see next question), but it won't go away with those treatments. The good news is that unlike many other eye diseases for which there's NO help, there IS help with Fuchs' Corneal Dystrophy!
Will I go BLIND with Fuchs' Corneal Dystrophy??
If you are seeing a fuchs' corneal dystrophy- experienced cornea specialist regularly, and following his/her directions, there is very little chance that you will go blind! A cornea specialist is an opthalmologist who has a license in (or "fellowship" in) "Corneal and External Diseases". However, not all cornea specialists are experienced in handling people with Fuchs' Corneal Dystrophy. Many of them deal only with Lasik and/or cataracts, both of which have to be handled very delicately if you have Fuchs' Corneal Dystrophy! This is why it's important to be seeing one who is experienced with handling patients with Fuchs' Corneal Dystrophy in all stages of the disease!
Can I do anything about it to make it better now?
Maybe. ONLY under the direction of an experienced cornea professional you can use Muro (a special saltwater solution) to remove some of the excess water in the cornea and get some temporary help. This does NOT help everyone's vision with Fuchs' Corneal Dystrophy. How do I know this? It didn't help me! If you have blisters, however, the ointment form of the Muro is said to have a very soothing effect on the pain. Under the care of a qualifed eyecare professional you might also try a hairdryer pointed toward the SIDE of the eye to dry excess water. This didn't help me at all either, though.