Some Common Questions
About Fuchs' Corneal Dystrophy
What did I do wrong to get this?
The answer is "nothing"! Unfortunately, this is a genetic disease and you were born with the gene! It may not have shown up for many years, but you've always carried it. You may not even have any idea who you got it from, since that person may never have had the disease advance enough to ever have had it diagnosed!
Is there a cure?
No; and Yes. No, there's nothing you can do to make it go completely away until it's bad. THEN there IS a "cure" for it .... a corneal transplant! That's where they remove the cornea from your eye and replace it with one from a deceased donor. There ARE ways that work for some people to help control some of the symptoms (see next question), but it won't go away with those treatments. The good news is that unlike many other eye diseases for which there's NO help, there IS help with Fuchs' Corneal Dystrophy!
Will I go BLIND with Fuchs' Corneal Dystrophy??
If you are seeing a fuchs' corneal dystrophy- experienced cornea specialist regularly, and following his/her directions, there is very little chance that you will go blind! A cornea specialist is an opthalmologist who has a license in (or "fellowship" in) "Corneal and External Diseases". However, not all cornea specialists are experienced in handling people with Fuchs' Corneal Dystrophy. Many of them deal only with Lasik and/or cataracts, both of which have to be handled very delicately if you have Fuchs' Corneal Dystrophy! This is why it's important to be seeing one who is experienced with handling patients with Fuchs' Corneal Dystrophy in all stages of the disease!
Can I do anything about it to make it better now?
Maybe. ONLY under the direction of an experienced cornea professional you can use Muro (a special saltwater solution) to remove some of the excess water in the cornea and get some temporary help. This does NOT help everyone's vision with Fuchs' Corneal Dystrophy. How do I know this? It didn't help me! If you have blisters, however, the ointment form of the Muro is said to have a very soothing effect on the pain. Under the care of a qualifed eyecare professional you might also try a hairdryer pointed toward the SIDE of the eye to dry excess water. This didn't help me at all either, though.
These are a few of the most common questions you may have. If you've been diagnosed with Fuchs' Corneal Dystrophy I'm sure you have many, many more.... along with major concerns. I'd like to suggest to you that you get some "how to live with it" information from people who have been living with it for years and found some answers. We've formed a FREE group of people just like that who are Christian. People who are in all stages of the disease, from little or no symptoms yet to people who have had cornea transplants, and even cornea transplant rejections. We've put together tips on living with Fuchs', informative links to learn more about it, along with our member message board where you can get personalized answers to your questions from people who know it best... the ones who know it first-hand from personal experience! Best of all, you'd find others who know just what it's like trying to explain the disease to other people, and try to explain why on earth you can see THIS thing just fine, but THAT thing you can't see at ALL, and "yes, we have an eye disease, even though our eyes look just like everyone else's"!
WE UNDERSTAND BECAUSE WE'VE "BEEN THERE, DONE THAT" AND FOUND ANSWERS!
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